Wednesday, August 05, 2009

Happy 6th Birthday!

Dear Emma,
Happy 6th Birthday my big precious girl! I cannot believe that it has been 6 years since you joined us in this world. At times it has been so scary....wondering if we would still have you with us the next day. However, you conquered all and we are so glad that you are here with us today to make us smile and laugh at the funny things you say.

I hope that today is the best day ever (we're going to see bears and wolves this morning....then driving to Boise for some great cousin time), and that your year is the most magical. You deserve only the best my sweet girl. This year will be filled with fun...including your wish come true:). Disney World in November will be so much fun. I cannot wait to experience it through your eyes.

I love you so much! Here's to many many many more years ahead....I love to watch you as you grow, learn, and love your world more and more.

Love you Princess,
Your Mama

Saturday, August 01, 2009

Fun Times???

Well, just so you'll be encouraged to keep reading I will start with an Emma funny:). Tonight I was cleaning up our paint mess (more on that in a moment), I had my back turned on my 2 children for a moment, when I noticed that Owen had disappeared down the hall. I asked Emma if she could go see what her brother was doing, to which she replied, "No way! That's YOUR job....YOUR the Mommy". Yes, she is full of sass...but sometimes she says the funniest things:). OK, one more....the other day she saw a boat on TV. She said, "Look at the BIG boat Mom". I said, "What do you think they're going to do with that boat Em?". She said, "UMMMM, go fishing...I ASSUME". She cracks me up!

Anyway on to the FUN TIMES in our house. Well, we started painting our house on June 8th. I thought that it would take 2 weeks....HA! For one thing our house seems to be GROWING as I paint, but "little" things keep getting in our way too. Things like 3 out of 4 members of our family being in the E.R. in the last week...Tim went to the ER on a Sunday with chest pain. This was after our vehicle had broken down 3 hours away from home....and we had left him there (in a hotel) and came home with his mom. So, he's 3 hours away from home in the E.R. when he calls me to tell me that they think he is having a heart attack (at 2:30 AM), but to just go back to sleep and he will call me when he knows more (yeah RIGHT!). Anyway, he called back at 5:00 AM and it turned out to be "just" heartburn. PHEW!

Fast forward 5 days to a fabulous girls night out with my sister and my good friend. After yummy sushi we were getting ready to head to the Suzi Bogus concert, we had just shut the doors to my sisters car, were getting ready to pull out of our parking spot when WHAMMMMMM! A man on HEAVY narcotics ran into us....then he pushed us into the car in front of us, THEN, he hit us again....going up on the SIDE of my sister's car (his wheels were ON the window)...finally my sister steered her car far enough over that he bounced down. That sent me to the hospital in the ambulance, where I was fully checked out because I was having back pain and it felt like there was an ice pack on my shoulder. All was well, just some serious muscle soreness...PHEW!!

Go ahead a few more days to my previous post...the one where I asked for a reminder about how "normal healthy" kids get sick too. Well, they do....and I realize that now, actually I knew that then...I was just scared. However, my little guy did have to make a quick trip to the E.R. to get re-hydrated after over 36 hours of continual puking and diarrea. I knew that he needed to go in when it had been over 10 hours without any wet diapers...on top of the puking and diarrea. So, in I went with my overnight bag (OK, that's where the medical paranoid mom might have stepped in). I was quite amazed to actually get to go home that night (even if it was 3:00 AM) WITH my baby. What a concept???? It's never happened to me before:). Phew!! A little Zofran (anti-nausea medicine), lots of rest and some Advil/Tylenol....and he's on the mend! PHEW!! Thanks so much to those that posted on that last one. I really DO appreciate it.

So, back to the house painting. We have made a trip to Denver, had 2 cars break down (one at home...one away from home...both needed new fuel pumps...hmmmm?), and now we are preparing for a trip to Boise to see our new nephew (baby boy named Karcher Kline _______________) in the midst of our anniversary (happy 8 years) and Em's 6th birthday (can you believe it?????). WHO HAS TIME TO PAINT A HOUSE???? We have 6 sides on our house and almost 2 months after starting we have 4 sides painted. Well, the important thing is ALL of the sides you can see from the street are painted. That's all that matters, right? Do I REALLY have to finish???

Never a dull moment around our house:). Hope that you are enjoying the last month of summer! I'm looking forward to our trip to Boise. It will be fun:).

Have to end this post with a fun 4th of July pic of Em and Ow....Enjoy:)
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Wednesday, July 29, 2009

I Need a Reminder

Please remind me that even "normal" "healthy" children....GET SICK! Please tell me that my extremely lethargic, vomitting, diarrea covered, non-eating or drinking baby boy WILL get better soon. Please remind me that even though he is displaying all of those symptoms with NO fever....it does NOT mean that he has some form of cancer, his organs are not failing, and he has not had some disease since birth that has been undetected until now. PLEASE remind me of these things, because my mind is having a difficult time learning that! In part this is because of all that we have been through with Emma, but it is also because I have thrown myself into story after story about sick children. My heart aches for those families that are dealing with sick children day in and day out, and at times I have become obsessed with different children's stories. I understand what they are going through....I've been there. HOWEVER, I do not want to go through it again. And, while I KNOW That that is not what is happening.....I still need a little reminder that this is "just" a normal childhood illness, right??

Please tell me that my SILLY MONKEY will be back soon...hiding the remote control from us, laughing and running away from me with my cell phone, giving me big kisses as I walk out the door as he says, "Bye Mommy". I NEED to see that little rascal BACK in this house SOON!
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Thursday, July 23, 2009

Seasons

Throughout my life I have experienced a changing of the seasons. There have been times when the seasons have rapidly changed, and other times when they seemed to last longer and slowly changed to the next. There have been seasons of joy, seasons of sorrow, seasons of frustration, and seasons of elation. The latest season that I feel myself quickly approaching is that of despair. Although I have tried to turn and run the other way, the winds of change are telling me that I must pass through this season in order to approach the next (which I hope is much more joyful than the current).

I find myself mourning that which I never had. I honestly have always been thankful that Emma was our first born. I never knew anything different, and while she was extremely difficult with her medical and other needs in the first year....it was all that I knew. I knew that it was "different" than others experienced with their first born, but I just went with it. She was my pride and joy, and although there were times of despair I could always turn and head a different direction.

Why is it that now....almost 6 years later that I am feeling such utter despair for the first time naive parenting that I missed? I think there are various reasons for the feelings that I am having. Mainly, I look at Owen and how easy and fun life is with him....and I just wish that I had had that carefree parenting (although I do somewhat have it now....I still have Emma....who is still not "easy"....I will get to that in a moment).

Emma....ah Miss Emma.....is she ever giving me a run for my money right now. I am in a place where I just feel like a complete failure as a mother. I am finding it VERY difficult to take her out in public right now. She is just naughty, and when I tell her not to do something...she just looks at me and laughs and continues to do it. I have tried everything....and I'm at my witts end. If anyone has suggestions I would love to hear them. Also, anytime we are around another child (whether she knows the child or not) I have to play interference. I have to constantly be on guard because she hits, pushes, puts her hands around the other child's neck, pulls hair, etc. Children do not like to play with her, and it makes my heart break! Is there a boot camp anywhere for children with special needs? I honestly feel like a total failure, and it is sending me to a very dark place.

I am looking forward to the "changing of the seasons". I am looking forward to happier times ahead. Today, I have thought a lot about my least favorite saying....one that many said to me soon after Em was born...."God only gives you as much as you can handle". I have talked to Him alot today about how I cannot handle anymore. I can handle the special needs part that comes with Emma.....but, I desperately NEED my SWEET girl back (even with a LITTLE sassiness would be OK...but, this is a little ridiculous).

This too shall pass, right? Please pray for me that it does.....

In other Emma news....all of her yearly apts. went great! She had tubes placed in both ears and her adenoids removed and came through surgery with flying colors! She also got to go to taking medicine only 1 time a day!! Can I hear a WOOOHHOOOO!!! Although she is still on 4 medications....she has NEVER only taken meds once a day! SWEET! We thought all was well....until the phone rang yesterday to tell us that her EBV (Ebstein Barr Virus) levels are very high. They will recheck her on Monday....so, we'll see. As much as I am trying not to read into it too much....this can have serious implications for a post transplant child. Please keep her in your thoughts. At this time she is showing NO signs of illness....so that is VERY positive! I'm just continuing to think good thoughts about that one:).

Thanks for reading about my gripe session! I hope all is well in all of your worlds:).

Sunday, June 21, 2009

I'll Love You Forever

Last night I read Emma and Owen the book I'll Love You Forever before they went to bed. This is a beloved book of many children about a baby boy who's mom rocks him and says over and over how much she loves him and he'll always be her baby. It shows the baby growing to a toddler, then a bigger child, then a teenager and she is still rocking him and saying the phrase to him. Then, it shows her strapping the ladder to the top of her car, heading over to his house (he's now an adult), and climbing through the window to rock him.

It is a sweet story, however I have always found it a little creeping that she is rocking her adult son.....until last night. As I walked in to check on my children I was acutely aware of the moment. The rise and fall of each of their chests as they breathed the sweet breath of innocence. That innocence will not always be there. I watched their beautiful faces as they journeyed through dreamland, and my heart skipped a beat at the thought of them one day being grown. It made me want to take both of them out of their beds and rock them and sing to them and cherish the moment. It made me contemplate the future and what it would look like. Will Emma and Owen like to cuddle when they get older? Do you think they will mind their crazy mama climbing through their bedroom windows to rock them when they are grown?? ( I am kidding...I think).

For today, I am cherishing every moment with them. I delight in the world that they see, and I love to view it through their eyes as they learn new things every day. I pray that the innocence stays with them for as long as it can:).

Here's an attempt at photos this morning....how do you get BOTH children to cooperate?? UGH! Notice they are not looking at the camera (none of those turned out). However, this one is pretty sweet!

Happy Father's Day to all of you wonderful Dad's out there! I am so fortunate that my children have such a fantastic role model and a great dad! I was also lucky to grow up with a caring and compassionate father!

Have a great day:)
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Saturday, June 20, 2009

"I took my own medicine Mom"

I got out of the shower this morning to Miss Emma telling me, "I took my own medicine Mom". She kept reminding me that she needed to take it....and I kept getting side tracked (bad mom), so I guess...at 9:00 (an hour later than she usually takes it) she decided that she would just do it herself.

Now, I KNEW that Em couldn't open the pill bottles, so I brought her into the kitchen and I gave her the bottle and told her to show me how she took her own medicine. She said, OK I will....and went to Owen's diaper backpack (where I keep a baggie of extra medicine....3-4 Prograf capsules (immunosuppressant med due to liver transplant) and 3-4 Singulair tablets). The baggie was empty, and she proudly showed me the empty bag and said, "See, I took them all by myself" (with a huge smile).

So, a call to poison control and a couple of calls back and forth to transplant and all is well. We are to skip dosing tonight and tomorrow morning, but Emma is no worse for the wear...if anything it hyped her up a little more today.

That's my girl...always keeping me on my toes

Monday, June 15, 2009

Dieting:(

Can I I just say that dieting SUCKS!!! I have never been one that has needed to diet...until I had children. After I had Emma I was SO stressed that the weight literally just fell off (and then some). However, since I had Owen...not so much! I really feel that I NEED to lose about 15-20 lbs. and I hate it!! I am not good at dieting, and I don't like to excercise. I've been trying to drink more water and less soda, but it is not helping!! We have family pictures scheduled next month, and I am so afraid that I am going to hate them because I am not happy with the way that I look!!! AHHHHHH!!! Any tips??

Monday, June 08, 2009

Gimme a Break....Gimme a Break:)

Break me off a piece of that Kit Kat Bar:). OK...so actually today I'm feeling like I need a tiny little break from the special needs parenting world. Just a minor glimpse into that life that I just have a view from the sidelines...the "normal" life of other parents with small children.

Yes, I hit the all time high of parenting moments. Are you ready for it?? Fair warning...this post is NOT for the squeamish! So, we went to the swimming pool tonight. The whole family went. Emma actually did really well. She has always been afraid of the water, and tonight she walked in like she owned the place (we have a graduated pool...that is AWESOME). So, once she got to the point that it was getting a little deep, I handed her a floaty noodle and guided her around the pool. She was having a GREAT time....then, the water got into her mouth (Insert...BIG UH-OH)...for whatever reason, Emma cannot get unexpected water into her mouth or it causes her to vomit. Well, that's when it started. I knew it was coming, so I carried her out of the pool QUICKLY while cupping her mouth, then IT HAPPENED, she turned her head just right and shot the puke RIGHT INTO MY MOUTH (AHHHHH! YUCK!! Gross!) and we ran into the locker room, and into a private shower room...where she continues to vomit PROFUSELY all over me and her. At this point I am thinking that they have closed the pool to make everyone go home. I peaked my head out to see...everyone still swimming (including Tim and Owen). So, I get us cleaned up...and we go back to the pool.

So, we are having a good time now. Apparently, when Em got sick it went all over me as I was getting out...but we managed to miss the water (remember that I am the Supermama Puke Catching master...if you don't know what I'm talking about go to some of my earlier posts...circa 2005-2006-2007ish). Well, we go back to swimming. Tim and I switch kids, and I'm having a good time with Owen (who is a little FISH)...he LOVES the water and is so much fun. He dunks his head....no big deal...no big puking drama, right?? Well, that is until the Mama (who just fed the baby boy about an hour before) throws him up in the air numerous times (I know...what WAS I thinking??)). Yep, you guessed it...OWEN starts puking all over me as we run out of the pool. Same senerio (MINUS The in.my.mouth.part.thank.you.GOD!!!)

They STILL didn't close the pool, BUT we decided it was time to go. I'm sure they were glad to see our family go....glad that we are members:). Not sure that I want to go back REAL soon!

On another SN parenting note....Emma has been saying "What'd you say?" over and over and over and over and over. So, today I took her to the pediatrician and sure enough....she can't hear! Major fluid on the verge of infection. I never thought that I'd be glad to hear that she had fluid on her ears, but I was about to go crazy from the continual "What'd you say?". So, hopefully we can clear the fluid soon. We go to the ENT next month (10 hours away!), so they can tell us that we need to come back to get a tube put in:). I'll be glad when that is done:)

So, yes, I am up at 11:30PM because I needed a little extra ME time tonight. Call me selfish, but I just needed a moment to breath in and breath out and recollect my thoughts before closing my eyes to drift off to sleep.

Good Night!

Saturday, May 30, 2009

Dear Emma...

Dear Emma,
As your first year of Kindergarten ends I felt compelled to write a letter to you. I have had the extreme pleasure of sharing your first year of kindergarten as your Mom....and your teacher (a combination that I think few get to experience). I cannot even begin to explain how proud I am of you. You have grown so much in every single way. I have been impressed time and time again by the gains that you have made...and continue to make.

What I have loved the most about this year is watching YOU become the teacher. You have taught the other children at our school things that I could never teach them, and you've taught me things that I didn't realize that I didn't know. I now have insight to a whole other world, and I am so excited to be exploring that world with you.

This year has gone better than I ever thought possible. When I have told others along the way that I was going to be your teacher they looked at me like I was crazy!! However, I knew that it was the best thing for you....and little did I know that it was the best thing for me too.

Thank you for sharing your first year with me. As I signed your report card (as your teacher) and circled the word RETAINED I really thought that my heart would drop. As a teacher we are always told that retention is not a good thing, however as I signed the word RETAINED I smiled and I felt free. Again, I know that it is what is best for you. It will give you the best foundation possible for your educational journey to be built on. We're in this together baby girl! You and me and me and you!! Plus, the biggest bonus for you is your best buddy Brindi will be the only other kindergartner in our class next year (we will also have 6 first graders). Life is good for both of us! I can't wait to see how much you blossom next year.

However, for now.....LET'S ENJOY OUR SUMMER!!!

I Love You!!!
Mama
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Wednesday, May 27, 2009

On Your Marks...Get Set....

GGGOOOOOO!!!!
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That's how playday 2009 began at our little school. Teams were forms, colored bandanas given to identify each team, and there was my little peanut in the midst of it all....just drinking up the enthusiasm flowing through all of the children. When she woke up that morning I said to her, "Are you ready for playday today?". She said, "NO, I want recess", and I said, "Well, it's like recess all day"....to which she replied, "YYYIIIPPPPEEEEEEE!!!!!!".

It all started with the obstacle coarse, then they went on to the shoe toss, marble toe pick up, softball throw, relay races, and the ever famous

TUG OF WAR
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Then, we went on to a SEVERE allergic reaction....that was fun (Ha!). After 2 doses of Benedryl, and a Mama/teacher that was very concerned...this is what Emma looked like

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She fell fast asleep right in the middle of the playground and someone placed my jacket over her.

However, when she woke up, thankfully the welts (all.over.her.body) had lessened and she was so very proud of her ribbons. A first and a second place...not bad for a little girls 1st day!!
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We are SO very proud of you Emma!!!

Oh, and I just had to share our little prairie girl. A few weeks ago we went to our sister school. Remember that our school only has 34 kids grades Kdg.-5th. Well, our sister school is 70 miles away from us and they have.....are you ready for this??......3 kids in their entire school. Well, every year they have a big event called Valley Days where our school goes up there and they have many different "centers" that the kids can go to throughout the day. It is a blast!! One of the "centers" this time was Old time photos. The kids got to dress in old fashioned clothes and get their picture taken in sepia tone. This picture is the one I took of Emma....it's in color, but it is so cute...and check out the background. Can you believe that this is the "backyard" for this school? It is breathtakingly beautiful....and so is she:) (just my biased opinion). It was a very sunny day (and Emma doesn't do well with sun....hence the squinting:).
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Friday, May 15, 2009

The Hallway Sprint

On your marks...get set....GO!!!! However, instead of a starting gun...there is "the cough". The one that is intensely programmed into my brain. The one that sends me running at top speeds down the hall, into Em's room to pick up the bowl that always sits next to her bed, to help her sleepy little head make it into the bowl....just to have her say, "Nope, I'm OK". PHEW! Crisis averted...this time.

Does anyone else know "the cough"? Is it just me? This cough has been following me for the past 5 1/2 years, and it will NEVER become my friend. It used to be GUARANTEED to be a puke fest by the time I got to the end of the hall. I used to just be happy if we made it in the bowl and escaped having to strip the bed and change pajamas. Lately, more times than not it is a false alarm...but I never know when the vomit beast may rear its ugly head, so I ALWAYS make the sprint.

Hey, I guess that is one way to get exercise. Does it count if I come out and eat an enormous chocolate chip cookie??

Wednesday, May 13, 2009

AHHHH....my love

The pendulum swings...and reality hits me from the other side. Each year, my husband and I have spoken at our local high schools about organ donation. This year, he is going to do it by himself because I cannot get the time off:(. He has been working on his presentation. At dinner tonight...this was the conversation:

Dad: "Emma, I'm going to be talking about you at school tomorrow"

Emma: "Why?"

Dad: "I'm going to tell them about you getting a new liver. What do you think I should tell them about you?"

Emma: "That I'm happy"

There it is my friends...and the silent lone tear streamed down my face reality hit me...that IS all that matters. Emma is happy, and that is all that life is really about.

Truthfully, that makes me REALLY REALLY REALLY happy too!

An oldie but a goodie:)

Emma at 2 1/2...Happy then...and Happy NOW!
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Tuesday, May 12, 2009

Reality

Sometimes reality hits me in the face, and I begin to realize once again that I am a completely different person than I was 6 years ago. 6 years ago I was a pregnant naive girl who just wanted to hold her baby girl, go on long walks with her, and plan her future with her. I just couldn't wait to see her face. The days inched by as my stomach (Oh, and my rear end) grew larger and larger. I had dreams.....I had a glorious future ahead of me that included my daughter's graduation and wedding and the grand children that she would bless me with. The biggest thing that I had to fear was labor....how WAS I going to get this child out? The thought scared me to my very core, BUT after she was out....life was going to be a "piece of cake", right?

Well, fast forward a few months, and we all know the rest of that story. Life has been anything BUT a "piece of cake". Life has been hard and scary, and at times it has just plain sucked! As much as I think that I'm slowly climbing out of the hole that I was thrown in....sometimes I get knocked back down, and the wind is once again completely knocked out of me.

Today is one of those days. I have felt it coming, but I never know what will be the final KICK that will send me flailing back to the ground. You see, I am a thinker...and it always gets me in trouble. I overanalyze EVERYTHING!! I think about life Pre-Emma and think about all of the friends that we had and all of the social gatherings that we were invited to, then I think about now and how alienated I feel. I feel like I have very few close friends right now...and those that I have do not live close to me. That is a lonely feeling. Then, I think about my friend who just lost her dog...not just any dog, but a very special loving companion that has helped her lonely heart over the years...and just like that....she is GONE:(. I worry that I do not know how to help my friend in the way that she has helped me SO many times. Am I not a good enough friend? It hurts my heart to know that she is hurting so much! Then, the one that is weighing heavy on my heart today....this morning I read about a little girl who took her final breath yesterday. She was 11 months old, and had never left the hospital. The family's one wish was to take her home just one day...it didn't happen. As I was reading, they had pictures showing that she was finally able to be held without any wires, and she finally had the wind in her face. And. I. LOST. IT!!! Completely and totally lost it! I should NOT read about those stories. I feel so badly for this family, and I immediately put myself in their shoes. I have this EXTREME fear of losing one of my children. I have planned Emma's funeral so many times in my head. I think of the time when the doctors told us, "her body is weak...we are not sure she will make it through this surgery, but she has to have it done" (the surgery was post transplant 10 days, and she was SOOOO sick). However, she made it....she endured the most difficult pain, and she pulled through. But, my mind can go back to those days in an instant....and I fear what lies ahead.

Why can't I pull through? Why does reality always suck me back down into that hole? Why DO children have to die? Why can't I have a crystal ball to look into my future to see that my babies will always be with me? Why is life so much more difficult today than it was 6 years ago...and why can't I just relax and enjoy today?

Sorry, I know that this post is dark, but it's what's on my heart today. Life was so much easier when I was unaware of all of the heartache in this world. My heart is heavy today for all of those who are hurting.

Friday, May 08, 2009

WOOHOO and some pictures

First of all...the big celebration....Emma has gone a whole week without hitting or pushing ANYONE at school. That, my friends is amazing! I am just so happy. Emma hits to get the attention of others because often her brain works faster than the words can come to her mouth. She so badly wants to show her excitement or ask someone to play with her...so, she just runs up and hits them. Amazingly, the kids in my class understand this. I sat them all down about a month ago and asked them if anyone thought that Emma was being mean when she his, and not one of them raised their hand. I asked them why they thought she did it, and their answers were so insightful. I was amazed. So, while I was relieved that all of her classmates understood her actions...I am even more relieved that she seems to be expressing herself better so the physical acts are going by the wayside (at least I hope they are). Hmmmm, what can I do to celebrate this momentous occasion? Any ideas?

We had our spring program at our little school last week. I always get so nervous before these programs this year because I wonder how Em will do. Each program she has had a really really rough week the week before, but the night of the program she just shines and does great. However, I still had the anxiety going into the week. She actually had a really good week, but then I found out that her aide would not be at the program....ahhhh!! So, the special ed teacher stepped in, and Em did AWESOME! The teacher really didn't have to do a thing. I was so proud of my big girl!!
Here she is doing her thing:). She knew this dance so well, but she always has to put her own spin on it:). I love it!!!
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2 days later we had Owen's birthday party. It was so much fun. I had 3 friends that all had babies within 2 months of me, so they were all there. It is so funny to see kids that age together. They really do not even notice that the others are around. I can't wait to see them together next year:).

Owen loved his cake
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Owen was so upset when he had to get off the slide:(. He likes to be right in the middle of all of the action
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The cupcakes that I made for his birthday. Watch out Betty Crocker:)
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Sunday, May 03, 2009

Happy Birthday Baby Boy!!

My baby boy turned one this week!!! Where has the time gone?? This has been the most amazing year. I never knew that I could smile as big as I do when I watch my 2 children interacting. Life has definitely come full circle, and my life is the most wonderful that I ever knew that it could be.

Everyone that reads this blog knows that Emma is amazing, but I do not write about Owen as much. So, here is a little Owen fun for all. Owen loves music and water. He is mischievous and ornery. He LOVES food, and will probably be eating us out of house and home soon. He loves to play chase with his sister, and loves it when his sister reads to him. He is little Mr. independent, and he gets so upset when his sister is playing with her friends on our fort in the backyard...and it is out of distance for him to crawl to (he seriously wants to be RIGHT in the middle of everything). Owen loves his Mama...and when we come home from daycare no one else will do (not even daddy:)...which makes his Mama smile even bigger. His daycare loves him, and he loves everyone there. Owen loves to ride in the car...and he plays "games" with Emma as we drive along.

Overall, the past year has been one of excitement and wonder. Not a day goes by that I do not realize how much more relaxing and carefree this parenting is verses the first year with Emma. If he had been our first child...we may have had 4 or 5 more (HA)....however, we will be stopping at 2:).

Life is good! Life is really really good! My 2 kiddos are both amazing!!
Here's my little baby boy a year ago
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And, here he is today! Wow...what a difference a year makes:)....
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Tuesday, April 21, 2009

Easter picture

Here are Emma and Owen on Easter morning. They were both feeling a little under the weather, and Owen literally kept his outfit on for about 2 minutes after this picture was taken....but, it was a good Easter:). Emma has fun finding eggs. We had to laugh at her as she found the eggs and THREW them in the basket....literally (picture crashing sounds!).

Here's an Emma funny for the day. Our family went to lunch the other day and anytime that her dad would hand her anything she would say, "Thank you Tim". Anytime that I would hand her anything she would say, "Thank you Mrs. F______(insert our last name:))". So, Tim said to her, "Well, aren't you little Miss Manners today". Emma said, "NO, call me Emma please". HA! Too funny!

Also, when we were on a walk yesterday, Emma said, "Today, you should call me Honey". I would say, "OK Honey". Then she would say, "No, today you should call me Sweet Pea". I would say, "OK Sweetpea". Then, she would say, "No, today call me Pumpkin Pie". And on, and on.....I really didn't realize that I had so many different nick names for her:).

Another funny (kind of???)....tonight we were at Kmart. We were in the women's clothes, and Emma gave a BIG sigh and said, "Ugh, I hate this". I said, "Well, we don't say that word, but what is it that you don't like". She gave another BIG sigh and said, "These stupid clothes!". Where does the girl come up with these things? Although she does have quite the attitude, and I don't really like that.....it still makes me smile! Is that so wrong????

Have a great week!
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Thursday, April 16, 2009

The Words I Needed to Hear

I've waited 5 1/2 years, and I honestly never thought that I would hear the words, but today was the day. We had Emma's IEP today, and her speech therapist actually said the words, "She is functioning at an AGE APPROPRIATE level in her receptive speech!". I have dreamt about the day that anyone would tell me that she was functioning at an age appropriate level in ANY area...so, for me (and of course for Emma) this is HUGE!!! It is a day of celebration in our house!

Other things that were SO amazing to hear in her IEP....she has gone from 30% intelligible speech to 68%. She has gone from an average of 1.6 words per sentence to 4.9 words per sentence. That is a HUGE gain in 8 months! I know that I am focusing the most on her speech because that is the area that she has made the most growth. However, ALL of her therapists were extremely impressed by the gains that she has made.

I actually achieved 2 new "areas of growth" myself today:
1) I made it through an entire IEP meeting without crying

2) I left the meeting with my head held high and a HUGE smile on my face

I LOVE Emma's therapy team!! They all work together and they have HOPE for Emma. They BELIEVE in her and her abilities. THAT is what she needs the most right now....and I am thrilled that she is getting it!

Today was an amazing day! I have known that she has made great gains this year, but to hear it from "the professionals" really was something that I needed. It made my heart so happy!

Thanks for letting me share:). She truly is a miracle in every aspect of the word! I think back to those early IEP's and today is just a miraculous day! 5 years ago I never would have dreamed that I would be typing this post:). It's a good feeling!

Tuesday, April 14, 2009

Made "The Corner"

Finally....today Emma has turned the corner and is feeling better. PHEW! That one really wiped her out. I had to take her back to the ped. yesterday for a different antibiotic, but this one seems to be doing the trick:). We went on a car trip today...just the kiddos and me. We were all in the car for 5 hours and they were "rock stars". They were SO incredibly GOOD! On the way home we were listening to Hannah Montana (oh course...is there anyone else?). Emma was singing the song, "Nobody's perfect". She knows almost all of the words, and she does these crazy dance moves with it...it is HILARIOUS!

It got me thinking.....(yep....here goes), the other day I was on a forum that I frequent. A mom on there is pregnant with her 2nd child. She just got the results back from her bloodwork saying that she has a 1:300 chance of having a baby with Down's syndrome. She is understandably worried, and I completely understand. This mom's 1st child has special needs, and I do completely understand her concern. I've been there....a year ago...when I was pregnant with Owen. However, what I am struggling with is the comments that some people made to her stating that "so and so" had a greater chance of having a baby with Down's...now that child is 6 and "perfect in every way". HMMMMMM....even if a child is born with a syndrome....the child is still the picture of PERFECT! That child is EXACTLY the way that God made them. I cannot look at my child and think she is anything BUT perfect....she's AMAZING!

Thursday, April 09, 2009

Staying AWAY from ER

Emma has an infection in her trachea??? She is coughing like a seal, and she spiked a fever of 103 today. She has literally slept all day long. So, I took her to the pediatrician this afternoon, and she has a virus that is in her trachea. I've never heard of such a thing. So, he put her on oral steroids and an antibiotic. He said that some kids are resistant to the oral steroids and if she acts like she is having trouble breathing to take her to the ER where they would give her breathing treatments and place her in an oxygen tent. Luckily, it seems like the steroids are working. Coughing has become much less frequent. She's still pretty lethargic, but she still has her fever also. So, we're hoping the fever comes down and tomorrow is a better day. I was just saying the other day that last Easter was her 1st ever to not be in-patient. She had always been in the hospital before that. Let's home that we can stay at home through this Easter season also:).

On a different note.....5 inches of snow today????? WHAT?? When is spring going to get here? Apparently Mother Nature has not received my memo!!!

Have a great Friday!!!

Owen is a FISH!

Owen is growing by leaps and bounds....changing every day. He is obsessed with the water, and always wants to be in the tub. Sometimes I put both kids in at the same time, however it gets pretty crazy with both of them in. So, most of the time I will bath one then the other. Well, this morning as I was giving Emma her bath, Owen was standing on the side of the tub (like he always does) laughing at his sister. I went to grab the shampoo, and he FLIPPED INTO THE TUB!!! He was just giggling and laughing...so proud of himself for being IN the tub WITH his PJs AND his diaper on! It was definitely a photo moment!! He is just TOO funny! Emma thought it was hilarious:).
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