Thursday, January 18, 2007

You are my sunshine

The sun is shining through once again. I believe that it is part of the roller coaster of being a parent of a child with special needs. Some days/weeks/months are very very dark. I try to keep those periods of time short....and to myself. However, it does help me to write about it. It does not make it go away, but it makes it more bearable. I always look forward to the moment when I can see the bright and shining light once again. I can see the sun shining through
Sunshine
and the name of the shining sun.....is.....EMMA
Em and me
The beautiful sleeping face that pops the shower curtain open each morning and says, "haaaaa" (her new hi....we don't quite have the long i sound yet....but, we'll take it). The sound of pitter patter feet in the middle of the night, and the finger poking me in the eye along with the sweet little voice saying, "mom, mom, mom" then making the drinking sound to let me know that she would like something to drink.

Yes, my "normal" may be a bit different than others, and I do sometimes grieve over the life that I have dreamed about every day (the one where I would have the child at the top of her class....the one where I could read the book What to Expect the Toddler Years...and I could relate to every single page....please note that all of those books were burned in my house when Emma was 3 months old:). However, one dream that I always had is being achieved every single day....I DO have the perfect little girl that I always dreamed about. She was made absolutely perfectly....the way SHE was meant to be.

7 comments:

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2DISCO said...

I still want to be her agent for Super model. Glad the days are brighter once again......

Anonymous said...

Hi,

I am also a mother of a child with BA who just had his transplant at ten months of age. I do read your blog quiet often. You write very well, and I relate to what you write. Thanks for being so courageous to write about your feelings and experiences. You have a beautiful daughter, and I wish your family the best.

Another transplant mom

Amy, Carly's Mom said...

Amen, Angie. Love this post.
I had to stop by for my dose of Emma smiles today. :)
She's such a sweetheart!
I wish I could just jump through this computer screen and give her a big hug and play in the snow & teach her how to make snow angels. We'd have a blast. :)

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Lunette said...

Keep up the good work.