Yet another visit to the hospital...another surgery under our belts....and more doctors pushing for Emma to be seen by the genetic team. Guess what folks....WE ARE NOT DOING IT!! I don't need someone to tell me that she is not talking yet. We have had every organ in her body inspected. Truly, what would a genetic team tell us that we don't already know? Yes, they may give a "name" to what she has, but I want my child to be known as Emma....not some name to a syndrome! True, that may be a part of who she is, but that does not define my child....END OF STORY!!!
The snow that I was so excited about in my last post turned into my nightmare. Soon after I posted my last entry I had walked into the kitchen, then I heard Emma crying. She had fallen off of the couch. I picked her up and tried to comfort her. It was a cry like I have never heard before. She would not move her arm and she screamed bloody murder and said, "OWWWWW" (a new word for Miss Em) anytime I touched it. So, I took her to our local ER and found out it was broken. We sat for 4 hours while they decided what to do. After talking to Denver about our last "simple procedure" (the one where Em crashed on the table and ended up in ICU), the anesthesiologist decided that he wasn't comfortable doing the surgery (she needed 2 pins put in). So, at 5:30 in the evening we left for our long journey to Denver (a 9 hour drive). The "beautiful" snow turned into horrible road conditions. At one point we had to drive 30 MPH for 60 miles! UGH!
Well, 3 nights in the hospital and a purple cast later Miss Em is on the mend. This stay in the hospital has made my heart feel a little more raw. That is the only word that I can describe. When you think of a broken arm you think of a "normal" kid thing, but having a 9 hour drive with doctors mentioning genetics on top of it just makes you realize that people cannot just accept that this is our "normal" for our little girl. Everytime I think that my heart is healing....someone else stabs me. I accept her for who she is, and I expect everyone else to do the same. Is that so wrong????