Friday, March 19, 2010

6 Years of Sunshine!

6 years ago today at 9:35 in the morning we received a call that changed our world. It was a cold, dreary, snowy day much like today. However, the phone call told us that the blanket that had been shadowing our world for the past 7 months was about to be lifted, and we could see the sun beginning to peak out of the clouds. The call was one that filled me with fear, but the fear was quickly replaced with a sense of peace. I KNEW that everything was going to be OK, and as we started on our journey toward this new chapter in our lives I knew that things were going to get better....that was the only option.

The morning of March 19, 2004 was similar to the previous morning. When I went to get Emma out of her crib she smiled at me. Her eyes were just as yellow as they had been the day before....verging on orange. It amazed me at that point that when Emma cried her tears were yellow. I prayed that morning just like I had done every morning, "Dear God please let this be the day". However, we were in denial that it could happen so soon. Emma had only been on the transplant list for 2 days short of 2 months. Therefore, we had not packed a bag....we were not ready to go. Nonetheless we knew that any call that came could be "the call".

As I changed Em's diaper that morning I noticed blood in her stool. I cried when I saw it, and I knew that our time with her was wasting away. She was sleeping 18 hours + a day, and she was in desperate need of a new liver. As I dropped her off with the sitter that morning....I knew. As I drove away with tears streaking down my cheeks...I knew. I knew that it was going to be "THE DAY". I don't know how I knew, but I did.

1 1/2 hours later I got the call, and I cried and begged God to "not let my baby die". Then the sense of peace took over, and the cloud moved away.

Sunshine has shone on us every day since. I see the sunshine every time that I look at the smile on Emma's face. I hear the sunshine every time I hear her say, "I Love You Mommy".


I'd like to share my Snapfish photos with you. Once you have checked out my photos you can order prints and upload your own photos to share.
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Now, if you know me well you know that I am not an overly religious person. However, today I do have to say Thank you God for giving me the sunshine....she helps me to see the path of our journey ahead.

Monday, March 01, 2010

Under My Rock....

Hiding under my rock away from the world....if only I could do that. If only I could take my beautiful family and hide away from all of the world I would be as happy as could be. However, that is not reality. Reality is people being unfair and cruel, harsh and untrustworthy...yet, they get away with it! My child is the victim of a teacher that!!! She truly has no sensitivity factor. She does not understand that the harsh tone and words that she uses are not acceptable. We've been rounds. Other staff members have spoken on my child's the administration....yet, nothing is being done. Now, they have decided to video Emma to develop a behavior plan for about coming up with a behavior plan for THE TEACHER!!!

I am stuck....I don't know what to do....this situation is overtaking my life.....and I feel like I have absolutely NO control. Moving Emma to another school is out of the question, and this teacher is the only special ed teacher in our school. This completely SUCKS! I was told today that "A parent's viewpoint is often skewed....not that that is all of it, but I think it is some of this". UGH! 7 other staff members have also reported this behavior is SKEWED???

Any thoughts?? I need input??? PLEASE!