Friday, October 15, 2010

Good Times

Emma has FINALLY had good blood results:). It's been 8 months since her labs started going up (liver numbers that is). We went to Denver in July for her annual check up. Our GI doctor (who is a rockstar by the way) wanted to do a liver biopsy (we have not had one done since transplant 6 1/2 years ago), and he wanted her to stay overnight until we got the results. We thought that was a bit strange, but our GI is cautious and we like that about him. So, we stayed overnight and the next day as I was packing up all of Em's stuff to leave the doctor came in and told us that she was in rejection and we would need to stay for IV steroids for the next 5 days. UGH! So, we stayed, and the numbers came down slightly, but not all the way. So, they kept tweaking her meds (she is now on 4 X's the amount of immunosuppression that she was and HIGH doses of steroids), and FINALLY the numbers are back down. The hard part for me, and yes this is superficial, is the way that it all makes her look. She is now 15 POUNDS heavier than she was in July!! She was 34 lbs. and she is now 49!!! She is also SUPER hairy! I know that it is only temporary, but none of her clothes fit, and she gets red in the face SO easily! Also, her immune system is now very compromised so I fear that she will catch more...especially being in a BIG school.

But, for now we will be happy to have good numbers and hope that we can lower meds soon and have her numbers remain stable!

Now, for Emma progress....Emma is READING!!! WOO WOO!! It is beginning stages, but I don't care....I'm going to call it READING! She knows all of her letters and sounds, and she is starting to get A LOT of sight words:). I LOVE IT!

Sometimes I feel like I might be able to start breathing again for the 1st time in 7 years:)


Cindy said...

That's great that her numbers are better! And reading! Whoo hoooooo!

Kristi said...

Breathe.. It's great news!!!!